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Joined 3 years ago
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Cake day: June 20th, 2023

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  • Yeah, I stopped trusting service provider with promises the moment they came into existence. “We’re compliant with XYZ” have as much value as “We promise to not snoop, see?”. And that’s not even considering security vulnerabilities. Certifications are merely the promise that at some point, someone maybe did something right (or maybe not), and paid to be able to say so (sometimes they don’t). Not very reassuring.

    Data remains on controlled systems, and if it has to get out, it’s encrypted properly, either for cold storage, or for specific recipients. Anything below that is believing random people saying random shit, and ignoring that every time there’s a data leak somewhere people go “oops, our mistake, it won’t happen again, pinky swear”.

    And I know there’s already an incredible amount of sensitive, personal data on the loose. That’s no excuse to let this trend keep going.


  • It depends on many things. The hard line for me would be is this running locally, on a server with the same IT management as my actual data, or on a third party servers. If the doctor either don’t know this, or can’t give adequate proof that it isn’t running on some third party servers, then all the “prioritize your privacy” aren’t worth shit.

    But that’s only the point where I give a hard no. The way it is used would also matter a lot. Is it used as a clutch for reference searching, or a full self driving decision making process that will write me a prescription in the end? This part is the same whether it’s for medical advice or for anything else: if the user is skilled enough to be able to evaluate/validate the output of the process faster than it would have taken them to do it manually, then there might be some value. Some usages fits into this. Some don’t. Summarizing large documents you did not read does not work as a safe thing, because, you’d have to read the document to check the summary. Getting the summary of a drug/sickness/whatever that you know about but need a reminder of, could be ok.

    tl;dr: it have to run in a privacy-enabled context (no third parties), it have to be used as a clutch (no skipping work), and the user have to keep is brain en mental activity alive enough to steer the system instead of being dragged by it. As things stands right now, I doubt there’s a lot of doctors that would fit all three points, but in the future, maybe.








  • The alternative is having every individual program try to store data about the user in their own, non-interoperatble formats

    The alternative is NOT to store that data system wide, NOT have it made easily available to anything in the first place, and NOT normalizing having all your personal data available at will to everything.

    Are you really arguing about the convenience of having personal data available system wide when it’s is absolutely irrelevant to 99.9% of running applications?


  • The biggest defense for this I see is:

    • it’s not bad now
    • it’s not mandatory
    • it will remain unused like the other fields that were previously there
    • you can put anything in it

    Then, tell me, why bother adding this in the first place, exactly at the time governments are looking toward full control of everybody’s computers? If it’s that innocent and useless, either someone really likes throwing shit up, or it won’t stop there.

    And given the slate of other things that “didn’t stop there” in the past few years, you know, it cost nothing to be cautious. Especially if it’s “so useless you won’t even notice it’s there” after all.