Kümmert euch um Maya

I also suffer from CRPS/RSD. I have type 2. Started in 2015 and I am almost now full body. I relate to Maya and this family in so many ways. My thoughts are with this young lady. The disease is real, the pain is unbearable, there Is no cure yet. Hoping to see a cure in my lifetime. Stay strong Maya.

For those reviews that I read that called this a fake disease, I pray you never get it. Better yet, live with this for a single day. One day. I bet you would not call it a fake disease after that. I have an implant to keep my pain at a tolerable level and my feet straight.

"I REFUSE TO SINK" keep that in mind fellow warriors!

Heavy and infuriating documentary, but very much worth watching.

Beata fought a David vs. Goliath battle all on her own, against three deeply corrupt systems all working together: the 'healthcare' cartel, er, system, social 'services', and the judicial system. She persevered and stood stronger than the overwhelming majority of people would in such a situation. Had her husband supported and fought alongside her, instead of subduing and criticizing her valiant efforts, I do believe the outcome for this family would have been very different.

Good on Maya for surviving through the ordeals these awful systems put her through, and for calling her three-month 'hospital stay' what it was - medical captivity. She is smart to steer completely clear of the medical cabal now, and I hope viewers learn the priceless lesson that our utterly broken, incompetent, corrupt, and self-serving 'healthcare' system cannot be trusted with your health and your life.

The utter AUDACITY of Johns Hopkins to bill Maya's insurance for obscene amounts under false billing codes, on top of the terrorism they were inflicting upon this family is blood-boiling. How is no one in prison over this?!?! Oh that's right, because these systems protect their own, and each other.

The cowardly statements issued by Johns Hopkins and that horrible judge at the end are disgraceful. Zero remorse or accountability for the devastation they inflicted upon this family. And as the documentary shows, this is hardly an isolated case. Who knows how many other families have been wrecked by the trio of social 'services', 'healthcare' systems, and the judicial system when they decide to destroy parents' lives based on little or no evidence. Or simply as punishment for daring to question the all-knowing (not) megalomaniac doctors.

Infuriating. I hope the family wins huge at trial, but if there were true justice, everyone who played a part in this awful situation would be behind bars.

There's a condition that has left your daughter crippled, you find a physician, who alleviates the ripples, it's a treatment of extremes, but it generates the means, leaves you happy and relieved, a little tickled. Alas remission takes you to emergency, where ignorance and blindness costs some fee, as your world is ripped and shattered, leaves you pulled apart and tattered, as authorities command, mandate, decree. The result destroys the lives it should protect, and incompetence has led to great neglect, hurdles layered to inflict, increasing pain and more conflict, turns out there's many who have had their lives all wrecked.

Powerful and moving and somewhat concerning.

I'll try to hold onto the belief that everyone in this scenario had the best interests of children at the heart in their positions. I'll try, although there's a huge conflict of interest issue that I'd like to see a second documentary tackle all in itself.

(The assessor also being part of the for-profit corporate care system that the referred children go into.)

But lets say that the care givers are there still to "do no harm" and were wanting the best for Maya. This documentary still poses the problem of what to do for "unicorn" illnesses. What to do when doctors from different establishments differ on diagnosis and treatment. Who gets to decide when there's not a widely established protocol?

And mainly, who gets the final decisions when it comes to health.

I'm not sure whose diagnosis and treatment are better, frankly, and will have to read more. Perhaps on that it was a toss up or even that the hospital involved was right.

However, when a hospital thinks parents seeking treatment for a child are wrong for following a doctors orders, there I can see what everyone else here is seeing. How would a mother or father know which doctor to trust? And why would they believe this group at the hospital when they've seen actual improvement before this that no one else got?

There had to be a better way to handle this.

There had to be a more HUMANE way to handle this.

There should be a less corporate, systemic way to handle this.

But unfortunately for some, the system overrules the carers and a few bad apples playing into that spoil it for the bunch.

I suffer from CRPS.

I also have other medical issues that end me in the hospital. I have to explain to each doc that comes in what CRPS is. EACH TIME. Noone wants to believe you. You lose friends, relationships and family members. And most medical people think your lying or it's in your head.

This is why it's nickname is "The Suicide Disease.

I've never wanted to throw something at my tv so bad before. I feel for this family. Especially for Maya and the loss she has suffered. Stress can trigger a CRPS flare up. Just like the hurricane did.

The ignorance and arrogance of these doctors are unreal.

Great documentary.