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Showing posts with label Disability. Show all posts
Showing posts with label Disability. Show all posts

07 September 2025

I am most richly blessed.

 


I asked for strength that I might achieve;

I was made weak that I might learn humbly to obey.

 

I asked for health that I might do greater things;

I was given infirmity that I might do better things.

 

I asked for riches that I might be happy;

I was given poverty that I might be wise.

 

I asked for power that I might have the praise of men

I was given weakness that I might feel the need of God.

 

I asked for all things that I might enjoy life;

I was given life that I might enjoy all things.

 

I got nothing that I asked for,

but everything that I hoped for.

 

Almost despite myself, my unspoken prayers were answered;

I am, among all people, most richly blessed.

Source: unknown.

29 August 2025

Maybe you would like to know what happened next.

 
I spent a week recovering from the journey before I was fit enough for surgery.  My left patella (knee cap) was totally shattered and was completely removed.  I was frightened that I would never walk properly again.

My right leg had been badly ripped in the accident and gangrene set in so the affected flesh was sloughed away and I was scheduled for a skin graft a week later.  Unfortunately I had brought an unwanted gift home with me - malaria!  I had to wait until that had gone before I was able to have the second session of surgery which involved collecting skin from my thigh and grafting it to my shin to cover the sloughed area.  

Then it was bed rest.  Total bed rest for a further month.  Eventually the plaster casts were removed and I was allowed to go to the hydrotherapy pool.  I was so excited.  A week or so of water supported exercise and other physiotherapy and I was allowed to walk for the first time in two months!  I was so excited.  I was shuffling along supported by two nurses and my Mother arrived to visit me.  She burst into tears at the sight of me.

I stayed in hospital for a while longer, learning to walk with sticks.  I had nearly three months hospitalisation all told.  Then home and working hard to build up my strength.  

For the next thirty five years I was able to walk and run fairly normally.  But as time passed my legs complained and I had to use first walking sticks, then mobility scooter and walker.  My left knee joint has been replaced.  I have an adapted bathroom and ramped access to my home.

However I am profoundly grateful for what I can do, thanks to the skill of doctors, nurses, physiotherapists and so many more.

26 August 2025

Mermaids

 


The Monday Mermaids were well down on numbers this week.  One is floating around on a canal somewhere, and one (Holly's mum) has gone to Turkey.  Just three of us.  So one got her phone out and two of us posed.  And we sent this picture to both of them labelled, "Wish you were here."  Neither of them seemed to regret being wherever they were so we had a chatty time without them.  
We are among the most regular users of the pool and have been going for quite a long time now.  Holly's Mum has mentioned to the owner that I have trouble getting into the building and he has now offered to improve access.  How kind is that!

13 January 2024

B is for Batmobile








No, not that Batmobile!


This Batmobile!

When this three-wheeled rollator entered my life I thought it looked as though there was a bat hanging from the frame so, inevitably, the contraption became Mary's Batmobile.

So much language surrounding disability is boring and/or condescending.  "Mobility scooter" sounds very dull, even though many children would love to whizz around on one.  There was once a rumour that the late Professor Stephen Hawking would deliberately run over people’s toes, including the pedal extremities of the (then) Prince of Wales. When asked about it he said it was a "malicious rumour" and he'd "run over anyone who repeats it".  I don’t toe squash deliberately, but I call my scooter my trundle truck which seems to suit it. TT's can be fun!

My Batmobile is purely for indoor use when I am feeling more than usually decrepit, so few people have ever seen me use it.  The black thing is a bag which usually contains my flask.  Which contains coffee.  Honest!

 



03 November 2023

More answers: disability

 Elizabeth in Cornwall asked, "With your 'truck', do you find that people are less or more helpful nowadays? And what about accessibility in general?" 

I love my truck!  Most people call them mobility scooters but that sounds so dreary that mine is my trundle truck.

I'm on truck number three.  They last about six years before their reliability becomes doubtful.  I replace the batteries after about three years.  My "Rascal" was paid for largely by a grant from a charity for decrepit Anglican clergy and I was very grateful as scooters are nearly £2000 each time I need one.  I have a car with a ramp so together the TT and I can go places.  

It's a freedom which I really value.  Maybe you can walk anywhere you want.  Maybe you don't have to plan your activities as a disabled person living in an able-bodied world.  I don't want much help and I value my independence and TT means I can do so much more.

I'd like to be able to do even more.  I'd like to travel by rail but Network Rail allows only very small scooters.  They are more accommodating for wheelchairs.  Most public transport is the same which means that only accompanied people can use it and I usually travel alone.  

I use a Blue Badge, not because I need to park very close to stores etc, but because I need to open my car dor fully.  Occasionally I hear people sounding off about this privilege but I have been known to tell someone, "Yes I agree it's very unfair.  I would give you my disabiity if I could but I can't so I am very sorry."

For the most part people are very good about offering assistance.  In shops they will offer to get things from high shelves.  Friends and strangers alike will carry hot drinks or trays for me in cafes.  Doors will be opened so I can ride through. 

My biggest problem can be fending off inappropriate help.  People grab hold of me without asking what sort of help I need.  I find that annoying and, to be honest, disrespectful.  We don't grab people without their permission except in an emergency and I resent being treated as an inevitable emergency.  If you grab my right arm when I am walking you run the risk of both of us tripping as you will be depriving me of the ability to control my stick and it will become a trip hazard.  If you ask me if I need help I will explain what I need or I will thank you for the offer if I decline it.  "No thank you" is a reasonable response so please don't assume you know my needs better than I do.  

25 April 2023

The restyle begins

Front drive -complete with Portaloo!
 Jack is coming today and today the sorting of my garden begins.

I think I have had the best builders in the world working on the alterations.  They have been so kind and courteous, anxious to make the whole process as easy for me as possible.  I haven't been able to use the drive for several weeks but each time I have parked my car on the street they have been there to carry stuff into the house for me.  It has been difficult for me to get to the wheely bins but they have taken rubbish out for me.  They have appreciated the copious supplies of tea and coffee (and have even remarked on the fact that I always use proper coffee amd posh mugs!) but they have well deserved every mug. 

Back gardeb skate board run!

 

And my neighbours have been great too.  The drive and front path haven't been available to me so my neighbour asked the builders to take a panel out of her fence so I could step through and use her drive.  Whenever I have apologised to any neighbour for the noise, dust and inconvenience they have all said they are delighted that things are being made easier for me.

And now I need to butter up Jack.  There will be a lot to do and I will have a large deficit of Brownie points as I won't be able to cook lunch for him today (I've been invited out so he will moan) but no doubt he too will avail himself of the unlimited tea.

And he too will do his bit to make my garden wonderful.  After he's cleaned the windows so I can see it!

20 April 2023

Going down the plughole

 I haven't gone down the plughole but I have had major alterations to the house including converting the bathroom into a wet room. I wrote a little about this in February.

There have also been major alterations outside to improve accessibility for me.  

Just two photos for the moment.  One of the view from my front door on Monday and the same view yesterday.  

The back door and garden access has also been altered but I'm not showing you that as I am teasing Jack who hasn't seen it any of it yet.




16 February 2022

Win: win

 When I thought about getting older I thought about loss of physical fitness, gains in "me" time, loss of (some of) my hair, gain of avoirdupois,  but I never thought about loss of "usefulness".

I've always been a busy sort of gal.  My jobs have always been in public service and I have done quite a bit of voluntary work.  I can remember wishing I had been more ready to say "No" when asked to help out!  

Then came retirement and, even more devastating, a walking stick, rollator and trundle truck (mobility scooter).  Suddenly I was in a new group, "The Disabled".  Suddenly I was viewed as always needing help and having no ability to offer help.  

But there are things I can do and this week one of those things came to me in the shape of a Scout shirt and a Brownie campfire blanket.  Like most mums Annie works full time and the thought of stitching all those badges was a little overwhelming so she thought of me.  She knows I sew and, indeed, I enjoy sewing so she brought the whole lot to me.  

A section of Brownie blanket
So it's win:win:win  Annie's children can wear their badges with pride, Annie can put her feet up and I feel useful and grateful to have been able to help.


The only problem is that the Scout leader sent a message asking if I would like to be badge sewer for the whole Group.

That would be being rather too useful, I feel.  

11 January 2020

A Thankful Joy


I went to Brookenby today.  Brookenby is one of several new villages in Lincolnshire which were originally RAF bases, in this case RAF Binbrook. 


The church at Brookenby is in the former Sergeants' Mess which it shares with the community centre and is about as untraditional a church building as you could find!  (Except maybe the church which meets in the lounge bar of the local, but that's another story.)

Recently they had the opportunity to acquire some extra rooms and they've set up a tea room, a charity shop and a small community grocery shop.  When I had finished the service last Sunday I had a look around and expressed an interest in a wheeled walking frame but left it as I hadn't any cash with me.

But on Tuesday I had a phone call from their vicar (who was elsewhere on Sunday) saying that if I wanted the walker it would be set aside for me.  What's more he told me quite a bit of the sermon I had preached as someone had enjoyed it and remembered it and told him.  So today I went to Brookenby to buy the walker.

So why the thankfulness?  Well, I felt that although I go to Brookenby only occasionally the congregation cares about me.  Someone had noticed my interest in the walker and done something about it.  Very often when I go I am just "the preacher" but actually for as long as I am there I am part of their congregation  with needs and a life outside the pulpit just like everyone else.  And they had appreciated my gift in preaching.  And I feel truly thankful for them.

09 November 2018

Nimbler in November

Mother used to tell me to use my head to save my legs.  What she meant was think about what you're doing so you don't need to use any more energy than necessary.  These days when I bend down to tie my shoelaces I look around to make sure there's nothing else I can do while I'm down there.

As you know I am "mobility challenged".  I use a trundle truck (mobility scooter).  I have a Home Enhancer (cleaner) and a gardener/handyman to help with stuff I can't do for myself.  All sorts of people help me on an ad hoc basis and most of them would do far more if I would let them.  And therein lies a problem.  It would be all-too-easy for me to lose even more mobility.

"Using my head to save my legs" needs to have  new meaning for me.   I want to keep such mobility as I have for as long as possible and that means I have to move rather more than I have been doing.  I have to find ways to move which I can fit into my everyday life.  This is easier said than done!

This week I have spent a lot of time in front of my computer doing a big job of scanning.  I decided to set an alarm to remind me to walk a few steps (about a hundred) every half hour.  Today I remembered that I owed a friend £1.  This morning I have walked the hundred yards or so to take the money.  I know she would have been quite happy for me to pay her next week when we meet for coffee but the challenge of that walk was important.  I've tried to stand at the worktop rather than sit at the kitchen table to prepare food.  

These "movement snacks" are all things which most people do without even thinking about it.  For me they are important.  I want to save my legs.  


24 August 2018

Three cheers for North Yorkshire Moors Railway

I've had a few days away in Yorkshire, supporting my nephew who has been doing the Coast to Coast Walk and while I was there I enjoyed the North Yorkshire Moors Railway.


Hagrid at Hogsmeade Station

I love travelling by train!   For me it's the best way to see the scenery of this lovely country in which I live.  Trains have one big disadvantage though - I'm not allowed to take the trundle truck (mobility scooter) which means I can't do much "at the other end".  So I booked my ticket for NYMR railway and resigned myself to the fact that the railway station would be the only part of Pickering which I would see.


Goathland Station
But NYMR is one up on Network Rail.  As soon as I appeared on Grosmont station a wonderful volunteer asked me if I would be travelling and said I could put the trundle truck in the guard's van!  How wonderful is that!!!  They brought a ramp and up I trundled with the help of a shove from the guard.  That meant that I could explore Pickering and anywhere else I wanted to see along that line.  


It really is a lovely line with the added interest that it was used for The Hogwarts Express in the Harry Potter films.  Goathland Station featured as Hogsmeade Station.  
Steam train at Grosmont

There are both steam and diesel hauled trains on this heritage line and they have the most wonderful bunch of volunteers.  Thank you NYMR,

08 May 2018

In praise of assistance for disabled people using the railways

The Fat Controller at Market Rasen.  There are lovely wood carvings all around Market Rasen

I had a trip out today - to Edinburgh.  Theaa.com tells me that is a round trip of 540 miles by road but I went by rail.   I thought you might like to see the Fat Controller who waved me off at Market Rasen.  


First I travelled on a little cross country train to Newark where I had assistance booked and assistance was there waiting.  A kind lady helped me down from the train and escorted me through the station.  Just as hoped for.

It was at Edinburgh that the service began to get excellent.  A helpful man came on board to help me off and offered to get a wheelchair if I would like.  No, I wouldn't like, just point me in the direction of the first class lounge.  I staggered there slowly and had a cup of coffee and a little something.  When I emerged the lovely assistant was waiting and again he offered a wheelchair.  This time I accepted gratefully.  What I appreciated was the fact that he offered but was quite willing for me to refuse.  He just wanted me to be comfortable.  I've never accepted a wheelchair ride before - I can be quite fiercely independent - but this thoughtful man gave the impression that, it wasn't just his job to offer help, it was his privilege and his pleasure to make my journey pleasurable.  Thank you, kind sir.

For various reasons my train back to Newark was delayed and I was worried that I would miss my connection back to Market Rasen and would have to wait three hours for the next one.  However the staff at Newark were brilliant!  They knew they had to transfer a person with disabilities to the Rasen train so they kept it back.  The train staff and the station staff all helped with a really quick and easy transfer, keeping me laughing all the way so once again I didn't feel that I was a problem.

Thank you, one and all.

04 January 2018

Disability and being awesome

I've been thinking quite a lot about disability these last few days.  I'm "mobility challenged".  I can walk short distances but for more than a few yards I use a mobility scooter.  

This means that I need a car which has a ramp on the back so I can carry my scooter with me wherever I go.  My car (which was damaged in an accident at the end of November) has to be replaced.   As you might expect, suitable adapted cars are more expensive than standard models and they are more difficult to find.  (I don't qualify for Motability.)

Normally when one's car is judged to be beyond economic repair it is collected very quickly by the insurer but as my car is still driveable, although bashed, my insurers have given my three weeks extra to find a new car.  The law requires them to take account of my condition and make a "reasonable adjustment" to their procedures to allow me time to do the extra searching a travelling I have to do to find the car.

So far I have been to see two cars, one near Leicester (ninety miles away) and one near Manchester (115 miles away).   I had each inspected by the RAC but because the car has been modified they have refused to do the basic check which is all I require.  Instead I have to pay an extra £90 for a fuller inspection even though they don't check the modifications.  

So I've decided to argue that to allow disabled people to have just a basic check (at £99) even though the car has been modified would be a reasonable adjustment as the law requires. 

This small battle will be my first attempt at being awesome in 2018.


08 July 2017

A Privilege

Privileges come in all shapes and sizes.  I've just had one.

This young man lives in Romania.  He was dependent on a wheelchair which meant that he relied on others to push him to wherever he wanted to be.


I was able to send him my spare trundle truck.  Where he goes now is his choice.  


Is there any greater privilege than to be able to give another human being a taste of freedom?




14 May 2016

Enhanced trundling

For the last eight years I've used a walking stick and for the last six I've used a mobility scooter usually known as my trundle truck.  Over the last six years I've made five applications for a Blue Badge and have always been refused.  Which is a pain.

I'm not sure whether the Blue Badge scheme is international so I'd better say that it's a scheme to allow parking concessions when a disabled person is using a car either as a driver or passenger.  Unfortunately it is often misused and Blue Badges are sometimes resented by able bodied people but when the badge is needed it is invaluable.

But it has now been decided that I qualify and today the longed-for badge arrived.  The trundling will get even better!

27 November 2015

A start to Christmas socialising

Sometimes Christmas feels like hard work - and sometimes it is pure joy!  I'm not waiting for 25th December for the joy - today I went to Newark and met up with my old school-friend Alice (Bobo's human, if you remember Bobo).

We've been friends since we were sixteen (which is quite a long time ago), and we can resume our conversation just as we left off.  Today we had decided that we would just meet for a very leisurely lunch at a village pub near Newark.  Three hours non stop chatter - the waitress was VERY patient!

But before I met up with Alice I nipped into Newark market.  It is truly delightful and I bought some lovely fruit and veg. It's almost the sort of market I remember from my childhood but only almost, not quite.  There are still the cheerful stripy awnings, the stall holders still shout their wares, and the stuff still looks scrummy and wonderful.



But there is one very sad difference.  Years ago this market square would have been full of stalls, just as it had been since mediaeval times.  Today, even on the busiest market day of the week, the square was half empty.

Whilst I was in Newark I rode my trundle truck over a rather bumpy pavement and the basket fell off the front, scattering my possessions, including my camera, across the pavement.  A women was sitting on a bench six feet away.  I unfolded my walking stick and got off and started to collect the detritus from the pavement.  A gentleman came dashing from the other side of a very busy road and helped me whilst the woman looked on.  Thank you, Sir.  And as for you, Madame, shame on you.

07 July 2015

Thank you

Thank you for all your very kind comments following my fright on Saturday.  I was out and about again today and I retraced my Saturday route.  Everything was fine and just after I had got past the spot where the problem occurred I saw a friend and was able to talk it through a bit with her so I have chased the demon away.

05 July 2015

Bless you, Princess

Yesterday I was frightened.  I was out on my trundle truck when three young men began shouting at me.  Actually I think it was an excess of beer which was shouting at me but whatever it was, I was frightened.

The shouting was of the “Give us a lift” variety (with a few personal remarks) which I am quite used to (without the personal remarks) and it is usually friendly but this time it felt threatening.  I had no choice but to go very close to them on the pavement (you can’t just cross the street on a TT!) so I just smiled and went past.

Just over a year ago I was coming back from London on a train and I had treated myself to a seat in the first class quiet coach.    There was a hiatus and a group of about a dozen young men came into the carriage, being ushered through by railway staff.  The lads were all determined to travel first class on standard class tickets and the staff were determined that wasn’t going to happen.  The ringleader was wearing a magnificent jester’s hat and suddenly he saw little old me, wearing my dog collar and sitting very quietly hoping they would just go past.  He went very quiet and the rest of the group realised he had seen something and they too started to stare at me.  Suddenly the leader laid his hand on my shoulder and said, “Aw, bless you Princess!” and off they trotted down the carriage like a flock of well-behaved lambs.  I sat and giggled for the rest of my journey.


Most people treat me with courtesy and consideration and in truth yesterday was the first time in five years of using my TT that I have really felt frightened.  Don’t worry, I’m OK and shall be out and about trundling again very soon.

23 March 2015

Nineteenth Century Trundle Truck

My trundle truck is great!  It takes me places I would otherwise miss out on.  Today it took me to Normanby Park.  











While I was at Normanby I saw this wonderful donkey Bath chair which was made some time around 1860.

Bath chairs (named after the City of Bath) were nineteenth century invalid carriages allowing a disabled or sick person to be trundled around either pushed by a servant or, as in this case pulled by an animal.

My trundle truck is much more convenient - but it would be fun to have a donkey to look after me!

03 October 2014

Trust

I’ve been to Normanby Hall again today and I’m feeling very frustrated because I can’t upload my photographs!

However, while I was there I had one of those incidents which make me think.  I wanted to get a photograph which involved leaving the metalled path.  Like a lazy idiot instead of getting out my walking stick I rode my trundle truck (mobility scooter) under the trees.  The leaves and a few twigs have started falling and soon my TT was stuck.  The back wheels had become jammed with damp leaves and I wasn’t going anywhere.  I got off, sorted out my stick and started to poke the leaves out.  It wasn’t easy.

Two ladies saw me struggling and came over to see if they could help and with their aid I tilted the TT,  the wheels were soon freed and I was free to trundle off.  And I was VERY grateful!

I’m very lucky.  People are usually willing to help me.  But sometimes I really don’t want help.  I know that if other people do too much for me I will lose some of the abilities I have.  I have thought long and hard about this and I have come to this conclusion – disability involves me trusting that people want to help when I need help but it involves my friends trusting that when I need help I will ask.  I hope I don’t sound ungracious.