Hi, my blogspot friends. Warning. This is probably a profoundly BORING entry... And if any of you have looked at the other blog, don't bother. For now the search for a kidney's on hold.
Blocked, Blocked, Blocked ...
I've been mostly gone this year, I realize, and for reasons that matter. As I've written two of my closest friends have been dealing with life and death issues, and two other friends--the ones I hope to live with--have been dealing with very serious stuff. Now, this does not mean I've been running around like Lady Bountiful taking CARE of anyone. While for Gail, yes, I've been doing a fair amount of driving and attending hospital appointments, and for Paige and Don (Don has kidney failure from multiple myeloma) I have done a fair amount of cooking, it is not the physical demands which have interfered with my writing.
It is my metaphorical heart. Emotionally, this year is overwhelming. Reaching the part of me that creates has been like reaching through sludge--not very effective.
Plus, now it turns out Gail needs a kidney/liver transplant, so getting the word out to over a hundred people that she needed a kidney, for now, is moot. She has another disease that has affected the liver because it stimulates the kidneys to overproduce creatinin. Surgeons will not risk her life even more by operating at all for now. We discovered this because she was mistakenly called at 2:00 a.m. a couple of months ago and was told, "This is your lucky day! We have a kidney for you!" She'd been on the list just three weeks and the person had been infected with the same disease, but her kidneys were very healthy and she was a near perfect match. We figured that perhaps her liver must not be bad after all. By 6:00 a.m. the surgeon called her back and we found out IN THAT WAY that no, she could not have the kidney. Furthermore she needed a liver and that she was for now, put on the INACTIVE LIST!
It's just been a nightmare for her.
Anyway, writing just did not come. Neither did painting. I could sing and play my keyboard, so that had to do for creative outlets. Contrary to what it may seem, I really do not ALWAYS want to write about unremitting pain and trauma. Actually, in some ways, I really do LIKE my life. My friends. Having different outlets for creativity. I am a very, very lucky woman. And the courage of my friends who have been going through far too much is a source of inspiration to me. They are NOT needy. They keep doing what they need to do to keep going. And they still know how to laugh.
Turns out, so do I. THANK HEAVENS.
Bike Rides to Nowhere ...
What I have been able to do, though, is work hard on my physical health. I ride my bike to nowhere like a bat out of hell for an average of five hours a week. I log it, just so that I don't let myself slip. I use my free weights, though I want to be able to use more than 10 lb. weights. This, however, is an area in which I will follow the advice of my doctor.
Why, you ask?
In my late twenties I decided that I would get really strong after my first back operation, so I used weights machines which, back then, were not really adaptable to women and no one showed me the proper way to hold myself... I wound up with
operation number two. After that, there were places like Gloria Stevens, the pioneer chain that introduced women to exercise and the concept that strong might just be good. I never wanted to be Twiggy. (For you youngsters, she was THE model of the sixties and weighed about a pound and a half. You were supposed to look like a GIRL, not a woman, and have either a boyish cut or long IRONED hair that obscured at least half your face.) I wanted to be the Queen of the Amazons. I know now that mostly I wanted this because of having been raped twice and abused by my brother, but I did not talk about such things then--hell, I blocked most anything like that within twenty-four hours of the episode. I was an expert at that. Anyway, STILL we were not truly trained in how to hold ourselves and, well, the emphasis still was more on aerobics to "Thriller" and wearing matching wrist and headbands and having torn sweatshirt tops that also matched... with leg warmers.
Being Jeannette, oddly enough, I took that to extremes as well. Contain your surprise.
Operation number three. After that, well, there was a long break in my doing more than getting through the days, the five additional surgeries and raising my kids. I had a brief time in my early forties, after my husband had taken off, when the back symptoms truly abated and I was extremely active. By fifty, however, things slowly disintegrated, hitting their worst when I was 58.
At long last, though, when I hit Sixty last year, something in me snapped back into place. I just wanted to have the rest of me be healthy. Maybe I could not walk, but I sure as hell could RIDE. So I started on my bike again and in the apartment gym again, a little at a time. For the first four months, I managed about 2.5-3 hours on the bike a week, at about a level 6-8 out of 16, and the weights machines for about 40 minutes a week.
Then, in January of 2013, I upped everything and decided to set myself ridiculous goals. I like ridiculous goals. I am not sure, but I think I like most anything that seems ridiculous. While, I could address this in counseling, I choose not to...
I found that Amazon Queen again. NO, not the boat from the movie. I am 45 pounds lighter and as of yesterday, ten minutes of my 100 minute "ride" were at level 14. The rest were split between level 11 and level 13. And I can do my upper body exercises with my ten pound weights far too easily. I have to find something else and probably will start back at the apartment gym. I wish I had the money for a gym, but I don't. Okay, I am getting obsessive and beyond boring there. I have a point, but, as usual, I am meandering toward it and, with a little luck, it will come out. I think it will be fun to be with other people at the gym for the winter. My life can be far too isolated in winter. Eventually, I'll figure out what to do at home to up my strength.
Okay, that's not meandering. That's leaving the river altogether.
Here's the thing, though.
I am not suddenly in less pain. I cannot walk farther because of any of this. I had hoped that I would extend my upright time, that the weight loss and tremendously increased strength would do that for me, but, as I feared, it has not. The damage is the damage is the damage.
Or maybe not...
My doctor teared up when I had my physical. No, He teared up because in the last year I have improved every single bloodwork and regular measure of health to put them... Well, he said this, "Your bloodwork, respiration, and blood pressure are better than most patients I have who are forty-five. I have never seen someone reduced their cholesterol by thirty-five points without medication or some special diet." And then I had him do the floppy foot test. He tested my reflexes and, as usual, I didn't have any in the knees or ankles. We laughed. I extended my legs and flexed my feet and smiled at him. He was puzzled. Then he pulled on both feet as he has for the last twenty-five years.
For the first time, I offered resistance in the RIGHT FOOT, not just the left. I held it for a full three seconds. This may seem like nothing to you all, but to him? To me? It means that when the pain gets to my "danger zone," and I know I have about twenty minutes to make sure I get to my car and then another maybe twenty minutes to get to somewhere where I can elevate my legs, I DO NOT NEED MY CANE. I can stand up straight and walk to the car. It's a kinda hinky walk, to be sure. But with every step I can take while standing TALL, I move the wheelchair destiny further away.
His tears spilled over. Just one from each eye, but that was enough. He had not one suggestion to make for the next year. I told him I wanted to lose another forty and, for the first time, he said, "Please. When you lose twenty, come see me again. I am not sure I want you to lose that much. Promise me that when you hit twenty more, you will come in."
I promised him, but I was kind of in shock. He told me he is not worried about my weight now. He is more worried that I will go too far. Gee. I wonder why...
So I make no promises about how often I'm going to be writing in my blog just now. Gail is so sick. Paige broke her ankle in three places so she was home incapacitated with Don, who still gets chemo and has home dialysis... Martha is over her Lyme Disease, which was truly awful and kind of scary to see. And, well, Soph (aka Linda), well, she is in another state and it is not as if she has needed my help at all. She is the strongest person I've ever known, but she has pain every day of her life. You would never know it, though, if you met her. But, then, you would not know it about Gail, either. They simply carry on.
I just worry is all, which is absolutely NO help to her. It is my calling, I think. Worrying. Seriously, the emotions can gum up one's creativity. But for now? Gail and I are taking off to Northampton and Amherst for a couple of days, just to enjoy the beautiful New England Fall.
I miss writing. I miss reading. But sometimes I guess I simply have to LIVE my life, the bad and the good all mixed in a jambalaya ... which of course, is the point. One way or another, most of this small life I live winds up in here anyway. Happy Autumn Everybody. Hold a good thought for Gail, for Don, for Paige, for Martha, for Linda--for the family I have built of friendships. I am FINE. I have to get out of my own way, wet vac the sludge from my brain and find my creativity again!
**** PS! ****
Read
Bruce Coltin's new blog HE is the one who reminded me to balance the workouts to include the whole body, something I also learned the hard way years ago... He is just a wonderful writer, and I'm finding it fun to read about his passion. And, as I read all the entries, my guess is that I will also LEARN something along the way! Anyway, that's my shameless plug for today.