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Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Tuesday, August 05, 2025

What, me worry?...

 Good and not so...

Ann is good. Getting her energy back and her taste buds are
beginning to wake up.

Carol is facing more challenges.
The tumor on her lung is growing. Doubled in size in three 
months.  So...it seems none of the options are particularly good. 
There will be a consult with a surgeon but she is still considered
high risk with anesthesia because of her lung function. After
all the years of different chemo drugs, they have taken a toll.
Radiation is another option except... if it's too intense and/or
hits too much of the lung it could do more damage. Consult
with her radiation oncologist is scheduled.
Third option is more chemo. The last treatment almost killed
her so obviously they will need to find something else.

She's getting physical therapy twice a week to build up
her strength. Whether that makes a difference in her choice
of options remains to be seen. One of few things that can't hurt.
Good news was that all the many scans that were done did not
show any cancer anywhere other than the lung. They do want a
mammogram done, just in case.

Decisions need to be made sooner rather than later. 

 

Sunday, November 24, 2024

I'll keep this short...

Carol got the biopsy results this week.
The spot on her lung is migrating colon cancer.

That puts her at Stage 4.

She is not a candidate for surgery. Too high risk.
That leaves radiation or chemo.
She'll see an oncology radiologist first week of December.
They'll make a decision after that.

Her oncologist is hoping they can do radiation
because it could be a "one and done" treatment.

So far, she's feeling fine. Not quite the energy level
she once had but close. Her positive attitude continues
to amaze us. She says "I've been through this before. I'll
get through it this time, too."

I hope she's right. 



 

Monday, October 14, 2024

Here we go again... (update)

In spite of good news, there is a new hiccup for Carol

They've been monitoring a spot on her left lung.
Comparing it from this scan to the one done in June,
it has doubled in size. Not good.

Oncologist said that is a definite sign of active cancer.
The complication is placement. It's behind the heart
which may make it nearly impossible to reach
to do a biopsy which means they won't know what
kind of cancer it is. Which means they won't know
what chemo to attack it with.

Radiation would also be tricky to impossible.

She is scheduled for a PET scan Friday. It will give
a more detailed look at the lymph node/spot area.

They'll be involving top-notch radiologists and surgeons
to look at the PET scan image and make recommendations.
Probably won't get their evaluations until beginning of November.

In the meantime, we will be (at least I will be) on pins
and needles waiting...waiting...

If you are so inclined, more good thoughts and prayers
would be appreciated.

(update...Carol got a call this morning saying her insurance
company refused approval for the PET scan. She had to
reschedule for November 7. Waiting 3 weeks instead of one.
Damn their asses.)


Tuesday, October 08, 2024

Picking up the slack...

 Good news is always a pleasure to spread.
Ann had a follow-up MRI and the results
were exciting and very encouraging. No signs
of the pituitary adenoma coming back or spreading.
The surgeon was thrilled and said she would
have another MRI in 6 months just to keep track.
Big sigh of relief.

Carol came through the ostomy reversal surgery
with flying colors and has completely healed.
She has an appointment with her oncologist Friday.
She'll get the results of her latest CT scan and hope
there are no signs of new cancer or spreading of
the cancer we know is there. Because of all the
surgeries and emergencies, she hasn't had any
kind of chemo since January...well, except for the
one colon cancer cycle that put her in the hospital
and rehab for almost two months.
We're 99% sure she'll go back on chemo for the breast
cancer she's been battling for more than 12 years but
unless the colon cancer rears its ugly head, there will
be no chemo for that.

This past month has been almost like a vacation because
there have been so few appointments and procedures
to deal with.

I'm getting ready for Christmas. Almost done shopping
and ready for wrapping and hiding and mailing.
Life is good.

I've been able to take more time to read lately.
This is what I'm working on now:












The worst situation is the horrible hurricane
damages and deaths this year with yet another
monster on its way as soon as tomorrow.
May all in its path survive.

Monday, September 07, 2020

You know what I wish?...

I wish TV would drastically cut down on
their cancer commercials.

I fully understand that education of all types is needed
to promote research and awareness but it seems almost
constant. 

You know my sister has been dealing with breast cancer
(metastatic now) for more than eight years.
She does not need to be reminded of all the statistics
and details of every type of the disease, treatment options
and warning signs every minute of every day without end. 

She worries enough as it is. I see it in her eyes.

It's too much.



 

Sunday, October 06, 2019

Better news...

My sister had an echo cardiogram on the 16th and a 
chemical stress test on the 20th of September.

No other doctor appointment was scheduled until Dec. 10.
That was entirely too long to wait for someone to
evaluate the test results and for her to not be taking
any kind of anti-cancer meds.

Why is it up to the patient/family to demand attention?

We went to her oncologist's office on the 20th to calmly
request that someone do something soon. Her doctor was
out of the country then, so she was given an appointment
for Oct.1, the day after her return. Fine.

Not surprisingly, the oncologist agreed with me about the
unacceptable delay. She reviewed the test results and we
were pleased to hear that my sister's heart function had
improved nicely and the stress test results were very good. 
The doctor determined Carol was strong enough to resume
her treatment of Herceptin and Tykerb. Immediately. 

The doctor's office then called the oncology cardiologist
office and got Carol an appointment for the next day.
He agreed with everything we were told by the oncologist.
He prescribed her carvedilol to support heart strength.

She started taking her Tykerb that day and is scheduled
for a Herceptin treatment this coming Tuesday.

The journey continues.

Sunday, August 25, 2019

Damn speedbump...

My sister got some disturbing news.

After more than seven years of chemo, it's taking a toll
on her heart.  The last few eco-cardiograms have shown
a steady decrease in pumping efficiency. Her heart is
weak enough now that she has to stop all cancer meds.

They say the damage is reversible but only by stopping
the chemo until the heart has a chance to gain strength.
Problem is, there's no telling how long that will take.
The other problem is, without the chemo, the cancer
will start to spread. 

She has no other major side-effects, thankfully.
Her energy level is good and she does damn near
anything she wants to do... drive, housework, shopping, etc. 

She's been referred to a cardio oncologist for further
monitoring and to determine when her heart is strong
enough to resume taking the cancer meds that have kept
her alive and kicking but, in themselves, could do her in.
The options include going back on the same meds but in
lower doses or finding something else that keeps the cancer
from spreading and hopefully doing less damage to the
rest of her body. 

She's taking this pretty well right now but I am a 
full-blown basket case (inside). I have to maintain some
semblance of calm for her and the rest of the family.

Is speedbump one word or two? speed bump?
 

Friday, May 20, 2016

Downshift...

Had my annual diabetic eye exam today.
Still blurry as I type this.
No major change in prescription but there are
tiny cataracts in both eyes (yay, old age!).
I asked if there was any way to slow down the
growth and the dr. said "vitamin C and sun glasses".
I can do that. See ya next year.

Carol is doing better since they stopped the chemo drug
and are only giving her Herceptin for now. As long as
the cancer doesn't start spreading, they'll keep her on
that. Maybe a year or longer.

She still has swelling in the left arm from lymphedema, so 
I'll continue to wrap her hand and arm every day.
All her fingernails are gone and now her toenails are
starting to fall off. Her feet and ankles stay swollen most
of the time. Steroids and water pills help some but not
consistently. 

All the years of advancements in science and it is still
mostly trial and error. Hit or miss. 

At least her energy level is better. She's getting antsy to
be able to get out on her own.
I don't blame her a bit.

Friday, December 18, 2015

Good news/Bad news...

The antibiotics appear to be working.
She finishes the last dose December 27 and a nurse will
come out to remove the PICC line December 28.
She is almost pain free. Energy level is up.
Blood work is acceptable. Oxygen level is better.
That's the good news.

The bad news is, her cancer is active again.
They put chemo on hold because of the spine
inflammation.  Didn't want to jeopardize her
immune system with chemo until the infection was
under control. But now her oncologist is very concerned,
so she scheduled a chemo treatment for next Tuesday
instead of waiting for the last dose of antibiotic. 
Doc doesn't know if the cancer activity is because she
hasn't had chemo in six weeks or if this chemo drug
is losing its effectiveness. She said that if it's not going
to work any more, there are still lots of other treatments 
they can go to. 

The cancer shows as a bad "rash" on her chest.
Carol noticed it "a while ago" but didn't say anything.
Ignoring the obvious is what put her in a dangerous
situation in the first place. Now, again.

I really don't know if my sister truly doesn't understand how
serious... or if she's in full-blown denial because she might
be so terrified of the reality that she can't/won't consider the
consequences. 

It's very much like living with a four year old at times.

Sunday, July 26, 2015

It's easy to forget...

I've been whining a lot lately.

I still don't have insurance because Medicaid has been dragging
its' ass since May. That means I've had to pay 100% out of pocket
for all my diabetes meds and supplies. I can't afford to do that
much longer. Medicaid doesn't care.
Plus, I owe about $40,000 in hospital and doctor bills.
Medicaid doesn't care about that, either. 

 Oh, and... the quack I was assigned to in the hospital is a moron.

The second reason I wish Medicaid would hurry the fuck up is
so I can find a new doctor with at least half a functioning brain.

Then, the other day, I got slapped upside the head, figuratively
speaking; A friend I've known for nearly 40 years was recently
diagnosed with brain, lung and bone cancer. Stage 4. 
Someone emailed a photo of him. I would not have
recognized him if I hadn't been told who it was. 
He looks like a Nazi death camp survivor. Skin over skeleton.

It breaks my heart. And it makes me ashamed of myself.

Life is short and time is so easily wasted.
 

Friday, August 09, 2013

TDM-1...

Her oncologist saw a spot she didn't like. 
Biopsy came back positive.

The herceptin she's been on obviously isn't 
holding back the cancer. She starts chemo again
with a drug that was just released this year...TDM-1
Her first session is August 20.
She might also need more surgery.

Good news is that tests did not show the cancer 
spreading to her bones or other organs.


Thursday, August 30, 2012

Things change...

but still remain the same.

This is a poor excuse for a blog.
Will it get better? Dunno.

Sister is doing really well.
Her oncologist is sooooooo pleased with the 
results of the second chemo mix that she will
be scheduling more of the same, which will take
her into late September/early October.

I really should try to scrape together some haiku.
You know, just to fill some space here.
I still haven't ordered the USB cord for my camera
so I haven't bothered to take any pictures.

I'm pretty much a dud. Don't count on me for anything.
Hard to believe there are things missed from the past life.

Warm hugs and thanks to those who still check in.

Tuesday, July 17, 2012

First blip...

The second series of chemo-cocktails is going well.
It's been suspended, however, because of the staph
infection in the tissue around the port.

They administered chemo treatment #2 in chemo series #2
this past Friday and then sent her to radiology to have the
port removed from her arm. Rx antibiotics for ten days.

We went back to the cancer center yesterday so she
could get the follow-up shot that's given after every treatment
(helps keep white blood cell count where it should be).
I told the nurse the port incision was still draining bloody
pus and the area around it is flaming red and hard.


That's when we found out the lab report from the culture 
named the infection as staph. Apparently no one read the report.
So, the oncologist ordered a massive dose of antibiotics to be
administered by IV and was to be monitored for an hour.
Initial Rx (keflex) to be continued 4x day at home.

Stitches are to be removed this Friday and she has a 
follow-up visit with the oncologist next Monday. If the infection
is gone they will schedule when to put in a new port, 
wait for that to heal, and get back to more chemo.


It's been a reminder that everyone involved is human/not perfect.

Saturday, June 02, 2012

It's June...

and I'm sitting here in sweatpants and a jacket.
And smiling at the weather here as I think of what I'd 
be complaining about in Florida.

Well, the mad dash of getting moved and settled has
finally slowed to a reasonable pace. I have a new bank
and a new driver's license, so I think that makes me an
official Buckeye again. Still acclimating, though. 
For example, I have to make notes to find my way around
on my own. One of my favorite sayings is "Not all who
wander are lost." heh. Not so true for me right now.
Things changed and the memos to me got lost.

I don't know what to predict about my blogging.
My old routine, such as it was, has been scrambled and
scattered. Inspiration is pitifully missing. I guess I'll
go with the 'one day at a time' concept and see what happens.

My sister is continuing to do well. Even her oncologist is
amazed. She finished her first series of chemo yesterday with
minimal side effects. She will, however, begin a second series
of chemo with different drugs in a few weeks.  They are trying
to reduce the cancer as much as possible before doing surgery.
We're all hoping, of course, that the results will continue to be good.
Many thanks to all of you who are sending good thoughts and 
prayers.


Unfortunately, I found bad news in the blogosphere. 
One of my long-time readers has passed away.
Unk lost his struggle with cancer. He will be missed.


It seems life comes with only one guarantee.