Afflicted

They had an opportunity to do a great service to educate people about these illnesses but they add to the problem. They did not even follow what the National Institute of Health uses as criteria to dx, and treat. They are suggesting psycho-social disorders but if they had researched any truly scientific journals or contacted top dedicated researchers, not fly by night, just pocketing money from desperately sick people, quacks, this could have been an awesome awareness avenue.

Extremly disappointed. They should be embarrassed by the lack of real research on their part.

The ME community has been fighting for years to get the recognition, and funding, that this illness deserves. The programme makers have manipulated the evidence in a way that perpetrates the myths around ME. This is a serious neurological illness, unfortunately this is not shown. Shame on you Netflix, please don't watch.

I can only imagine how these chronically ill individuals felt when they saw what their hard work and sacrifice had produced. The filmmakers draw back the curtain on their lives not with compassion, but more like a sideshow huckster asks the healthy audience to step right up and get a closer look at the freaks. Once you realize the framing, it's hideous. Worse, it's obviously taken its directorial inspiration from 'Unrest', a far more honest depiction of chronic, unexplained illness. The hard work the Unrest crew put in to carefully decide how to frame their narratives feels stolen, co-opted by a team that was lazier and carried ill intent, hoping to capitalize on Unrest's success. Healthy people looking down on sick people is nothing new, so the only question I have left is to wonder what possessed Netflix to pick it up? If this show were about any other marginalized group, would that be all right? Asking for several million friends.

The issue I have with this series is that the stories are broadly framed as being psychosomatic even though some of the conditions have a long and established history of being physical. For example, ME has been recognised as a physical neurological illness since the 60s. A lot of viewers seem to be lumping all the conditions together as psychosomatic an example can be found in another review here on IMDB.

I think this is for a number of reasons: The stories are jumbled up randomly rather than one story per episode, Doctors speak in general terms about psychosomatic illnesses rather than about the individual cases, Poor editing, e.g. a clip of Jamison who has Me (Which is a physical illness) is used while a doctor talks about chronic illnesses being caused by the mind then followed by another MD saying statistically most cases are psychiatric. There seems to be disproportionate amount of content from doctors talking about psychosomatic illnesses and not enough scientific content validating conditions, e.g. the history and science of ME.

Documentaries like this need to be handled very carefully and sensitively, there is enough misunderstanding and stigma that surround these illnesses and documentaries like this should be helping educate people rather than perpetuating ignorant and harmful views. It has been deeply upsetting to read all the negative comments questioning the validity of peoples illnesses on Twitter.

Ok, I can see that this show has touched a nerve in many reviewers. I can imagine the frustration of folks suffering with undiagnosed illnesses. I myself have been dealing with depression and anxiety as well as chronic back pain. I have been trying to find good treatments for years and have found little. Any of these shows can tend towards being a freak show, but I didn't feel that the series is overtly trying to do this. These disorders are hard to wrap your head around, but I do believe that it gives a glimpse into this world. Are these folks suffering from physical conditions or are they psychological. Either way, they are suffering and while the series presents itself as a bit of a freak show, I think it is intriguing enough to engender some empathy from the ignorant, myself including. What is clear is that there is a world of hucksters praying on these folks, which makes me angry. Many of the rouge treatments seem to be completely made up or back themselves up with fake science. They likely make a lot of money off of these folks. To be honest, I am on my second episode, but am intrigued enough to continue. If you are interested in medical mysteries, check this out.