O Mistério de Maya

There's a condition that has left your daughter crippled, you find a physician, who alleviates the ripples, it's a treatment of extremes, but it generates the means, leaves you happy and relieved, a little tickled. Alas remission takes you to emergency, where ignorance and blindness costs some fee, as your world is ripped and shattered, leaves you pulled apart and tattered, as authorities command, mandate, decree. The result destroys the lives it should protect, and incompetence has led to great neglect, hurdles layered to inflict, increasing pain and more conflict, turns out there's many who have had their lives all wrecked.

Powerful and moving and somewhat concerning.

As a CRPS II sufferer of over 13 years now I could tell within the first few minutes this is what Maya was suffering from. Unfortunately it is very often misdiagnosed and completely misunderstood by so called medical 'professionals'.

My heart breaks for Maya & her family. As an adult this disease is excruciating and a very hard journey to navigate. Children should NEVER have to experience this condition. Her Mother was a protective warrior advocate! Things should never be this hard. This documentary is a sad but very real insight into a rare complex disease & condition and how sufferers & families are treated, dismissed & often worse, not just in the US, but around the world!

May this much needed documentary shed light on this condition & others and may this family find some justice. This family will forever be in my families hearts & thoughts going forward. We believe you Maya.

I also suffer from CRPS/RSD. I have type 2. Started in 2015 and I am almost now full body. I relate to Maya and this family in so many ways. My thoughts are with this young lady. The disease is real, the pain is unbearable, there Is no cure yet. Hoping to see a cure in my lifetime. Stay strong Maya.

For those reviews that I read that called this a fake disease, I pray you never get it. Better yet, live with this for a single day. One day. I bet you would not call it a fake disease after that. I have an implant to keep my pain at a tolerable level and my feet straight.

"I REFUSE TO SINK" keep that in mind fellow warriors!

As "Take Care of Maya" (2023 release; 103 min.) opens, It's "February 24, 2021" as we are introduced to a guy named Jack. He muses "There is nothing that could prepare me for what I went through." We then go back in time: Jack remembers meeting Beata, and eventually they have 2 kids, a girl and a boy. The girl, Maya, suffers from a strange illness when she is 9... At this point we are less than 15 minutes into the documentary.

Couple of comments: this is the latest documentary from director Henry Roosevelt ("Tough Guys"). Here he examines the phenomenon currently referred to as medical child abuse (a/k/a Munchausen's by proxy). Jack and Beata bring Maya to the ER at Johns Hopkins All Children's, and next thing we know the hospital calls in Children Protective Services, and things only get worse from there.. I mean, you have to see it for yourself because otherwise you won't believe it. (The fact that Florida outsources its privatized child welfare service to a third party should be an INSTANT red flag, but hey that's Florida for ya.) The results are as predictable as they are preventable. Families shredded apart? No worries. Lives destroyed? Who cares. I honestly don't know how some of these people can sleep at night. This documentary is bound to get under your skin, if not outright infuriate you. Don't say I didn't warn you!

"Take Care of Maya" premiered recently at the Tribeca, to immediate critical acclaim. There is good reason why this documentary is rated 91% Certified Fresh on Rotten Tomatoes. It started airing on Netflix a few days ago, which is where I saw it. If you are in the mood for a medical=themed documentary that is equally heartbreaking as it is infuriating, I'd readily suggest you check this out, and draw your own conclusion.

As a social worker in the UK I can understand why there would be concern over a young child having large and Frequent doses of Ketamine but this decision did not stem from the mother, Ketamine was prescribed by a Doctor! Her mum was not obtaining or administering this drug illegally. Therefore, the hospitals argument over diagnosis and care should Have been between professionals. They should have come to an agreement on how best to treat Maya, including the parents in any decision making. The mum posed no threat to Maya in hospital, therefore, her Visitation rights should not have been stopped.