O Mistério de Maya

As a CRPS II sufferer of over 13 years now I could tell within the first few minutes this is what Maya was suffering from. Unfortunately it is very often misdiagnosed and completely misunderstood by so called medical 'professionals'.

My heart breaks for Maya & her family. As an adult this disease is excruciating and a very hard journey to navigate. Children should NEVER have to experience this condition. Her Mother was a protective warrior advocate! Things should never be this hard. This documentary is a sad but very real insight into a rare complex disease & condition and how sufferers & families are treated, dismissed & often worse, not just in the US, but around the world!

May this much needed documentary shed light on this condition & others and may this family find some justice. This family will forever be in my families hearts & thoughts going forward. We believe you Maya.

As a social worker in the UK I can understand why there would be concern over a young child having large and Frequent doses of Ketamine but this decision did not stem from the mother, Ketamine was prescribed by a Doctor! Her mum was not obtaining or administering this drug illegally. Therefore, the hospitals argument over diagnosis and care should Have been between professionals. They should have come to an agreement on how best to treat Maya, including the parents in any decision making. The mum posed no threat to Maya in hospital, therefore, her Visitation rights should not have been stopped.

I also suffer from CRPS/RSD. I have type 2. Started in 2015 and I am almost now full body. I relate to Maya and this family in so many ways. My thoughts are with this young lady. The disease is real, the pain is unbearable, there Is no cure yet. Hoping to see a cure in my lifetime. Stay strong Maya.

For those reviews that I read that called this a fake disease, I pray you never get it. Better yet, live with this for a single day. One day. I bet you would not call it a fake disease after that. I have an implant to keep my pain at a tolerable level and my feet straight.

"I REFUSE TO SINK" keep that in mind fellow warriors!

It's multi level $h!t show. From the laws, to CPS, to medical doctors,hospitals, to the courts and lawyers. And it's about money and power.

Beata didn't bow down and give the respect/worship that obviously some had felt entitled to. Don't ask questions. Don't act like you have a brain, don't respect your own voice and individual rights or powers. Know your place. These are all indoctrinated until we don't even know we are living with those chains on. Beata was a hero. As is every other parent you doesn't fold.

The policies and laws should not be governed by popular opinion. It got this way because 30-50 years ago child abuse was perhaps, too easily overlooked, but just like everything else..... things swung to the opposite extreme direction. What's even scarier, are people who REALLY think they are doing the right thing, not realizing they are being driven by any and everything but what is right ethically and morally. I hope this opens up some eyes and hearts, but that we don't go all crazy and swing crazy opposite again. When will we learn?

I suffer from CRPS.

I also have other medical issues that end me in the hospital. I have to explain to each doc that comes in what CRPS is. EACH TIME. Noone wants to believe you. You lose friends, relationships and family members. And most medical people think your lying or it's in your head.

This is why it's nickname is "The Suicide Disease.

I've never wanted to throw something at my tv so bad before. I feel for this family. Especially for Maya and the loss she has suffered. Stress can trigger a CRPS flare up. Just like the hurricane did.

The ignorance and arrogance of these doctors are unreal.

Great documentary.